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    认知症患者配偶照顾者的负面体验与服务对策研究

    • 作者:闫明月 阳方出版日期:2017年06月
    • 报告大小:1.57MB
    • 报告字数:14316 字所属丛书:
    • 所属图书:都市社会工作研究 第2辑

    摘要

    认知症患者目前多是居家接受照顾,其配偶是其主要照顾者。身心尚需呵护的老年配偶在照顾认知症老伴的历程中产生了许多负面体验,其身心状况令人担忧。笔者对11名认知症患者配偶照顾者进行半结构式访谈,以深入了解认知症患者配偶在照顾历程中产生的负面体验,并探讨与认知症患者配偶相适切的社会服务。基于对访谈资料的分析,认知症患者配偶照顾者经历的负面体验有如下5个阶段的内容。①诊断前:意外察觉与困惑不解。②诊断:犹豫与不知所措。③确诊初:无奈接受与失落、担忧。④照顾中:身心俱疲与时空占用。⑤未来时:过一天算一天。据此,研究结合社会工作视角提出在宣导预防、疾病筛查、疾病诊断、家庭支持、社区照顾、政策倡导等方面为认知症患者配偶照顾者提供较为系统和完善的社会服务,以减轻其照顾压力和促进其身心健康。 <<
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    Abstract

    Patients with dementia are currently cared for at home and their spouses are primary caregivers. The elderly spouses who still need care have many negative experience when they take caring of their spouse with dementia. Their physical and mental status is worrying. In this study,we interviewed eleven spouses of patients with dementia to explore their negative experience,and to explore the appropriate social services for this population. Results show that the negative experience of spouses of dementia patients included:① before diagnosis:accidental detection and confusion. ② to diagnose:hesitation and being at a loss. ③early diagnosis:reluctant to accept,being worried. ④during care:exhausted and space-time constraint. ⑤in the future:counting the days. Therefore,the study proposed more systematic and improved social services for the spousal caregivers of patients with dementia,including prevention,disease screening,disease diagnosis,family support,community care,policy advocacy,to relieve their pressure of care and promote their physical and mental health.

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    作者简介
    闫明月:
    阳方:阳方,上海大学社会学院讲师。
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