Patients with dementia are currently cared for at home and their spouses are primary caregivers. The elderly spouses who still need care have many negative experience when they take caring of their spouse with dementia. Their physical and mental status is worrying. In this study,we interviewed eleven spouses of patients with dementia to explore their negative experience,and to explore the appropriate social services for this population. Results show that the negative experience of spouses of dementia patients included:① before diagnosis:accidental detection and confusion. ② to diagnose:hesitation and being at a loss. ③early diagnosis:reluctant to accept,being worried. ④during care:exhausted and space-time constraint. ⑤in the future:counting the days. Therefore,the study proposed more systematic and improved social services for the spousal caregivers of patients with dementia,including prevention,disease screening,disease diagnosis,family support,community care,policy advocacy,to relieve their pressure of care and promote their physical and mental health.
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